Remy is 3-years-old and currently in remission from Pre-B acute lymphoblastic leukemia.
“People will ask why we brought Remy into the Emergency Room that night. My wife went to the After Hours Urgent Care when Remy was looking tired, and pale, and lethargic. His color was gone from his face and the nurse said he was bound for the ER one way or another that night.
You see Leukemia crowds out red blood cells with cancer cells, it deprives your organs of oxygen and they begin to shut down, hence the pale color and the lethargy. The odds of his ailments being leukemia were about 1 in 1000. They settled us into a little blue hospital room on the 2nd floor. Remy was out in another room for a procedure when the doctors told us, I held my wife and we cried.
Those 10 days of that initial admission were the hardest days of my life. It was a lot of long days waiting at his bedside, and a lot of long sleepless nights, waking him every few hours for vitals. I remember feeling helpless- a feeling I hate. To me, it’s the worst feeling in the world, when you submit to the notion that there is no action you can take to make your two-year-old feel better. Remy’s older brother Charlie brought so much sunshine to that little blue room that was our world. The outside world seemed too much to think about on top of everything. Too much internet scrolling and information and not enough answers as to what our life was going to be like. We had no idea.
As the word got out of Remy’s diagnosis, I realized how incredibly kind and generous people are. Even as I say this now I am overwhelmed with the outpouring of support and love from our friends, our family, from people we had never met, and some we will likely never meet. And all people who I will forever be indebted to in what was undoubtedly the hardest week and a half of my life. I am amazed. I am grateful.
We are a year into his treatment, and he is in remission! We don’t know what the future brings, but we do know that we wouldn’t be where we are without everyone who has supported us and have joined the fight for the cure. And with the help of the NPCF, we are closer and closer to a world without cancer. A world where Remy grows up and tells his kids, his spouse, there was this thing called cancer. And he had the help of great people along the way, he beat it.”
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