Here is the story of Joshua McFadden. A young boy whose impact has grown beyond what he could’ve ever imagined!
Joshua was a sweet and caring 11-year-old when he was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG is a highly aggressive and difficult to treat brain tumors found at the base of the brain) on February 2nd, 2016. Joshua was passionate about the Green Bay Packers, video games and those around him. Soon after being diagnosed, we took a Make A Wish trip to Silicon Valley in order to take a tour of Google. One of his favorite memories was meeting Jordy Nelson, a player for the Packers. Through all of this, Joshua was treated at luries by Doctors Stewart Goldman and Alica Lenzen. Joshua had to undergo radiation for 6 weeks, in hopes to stop the tumor growth. In June we participated in a trial in New York, unfortunately resulting in the need for a ventilator. He fought for 11 months before losing his battle on January 15, 2017, leaving behind two sisters, a stepsister, parents, and step-parents.
Although passing away, Joshua has continued to impact and change those who met him, along with those who were unable to meet him in his short time. Just before passing he asked what he had achieved in life, and what his purpose was on earth, questions no 12-year-old should begin to think of. Joshua requested to have his brain and brainstem donated for research so that no other children had to go through all the pain that he went through.
Joshua, your legacy will live on forever!
September 8th, 2004 – January 15th, 2017
To view more of Joshua and his story, visit the Facebook page Fighting DIPG with Joshua.
Quick Facts about Diffuse Intrinsic Pontine Glioma (DIPG)
- Diffuse Intrinsic Pontine Glioma (DIPG) is a rare, and very lethal, form of pediatric brain cancer with only 200-400 children diagnosed in the U.S. each year.
- Surgery, chemotherapy and radiation are the most common treatments for brain tumors. There is an increase in clinical trials that are becoming available across the country.
- Brain and spinal cord tumors are the leading cause of cancer-related death in children and adolescents.
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