Donate in Memory of Madison

Donate in Memory of Madison

Madison Marie Lipker, 20, entered the arms of her Savior on March 30, 2021. She was born on February 21, 2001, and was diagnosed with Fusion Positive Rhabdomyosarcoma in July 2019. She graduated from the Sarasota Military Academy and Aveda Institute. Madison’s first job was Valentino’s on University which she absolutely loved. The owners and staff are the best and they went above and beyond in supporting her.

Madison knew from a very young age that she wanted to become a cosmetologist and she attended the Aveda Institute this last year. This is where Madison shined and she woke up excited to go to school every day. Madison would say, “I’m at the top of my class with the most days missed.” She had a natural talent for doing hair.

Some of Madison’s favorite things to do were play games, go to the beach, travel and spend time with her family and friends. Church was very much a part of her life, volunteering in tots, attending youth group, and going on a number of mission trips. Her relationship with the Lord was what became important to her and she shared that with everyone around her. She wants everyone to be in heaven with her one day so she wasn’t afraid to tell you like it is. Madison will be greatly missed.

The family would like to thank the doctors and staff of Moffitt Cancer Center in Tampa, FL for the incredible care they provided to Madison. A very special thanks to Dr. Damon Reed, Marris Stebbins RN, and Trip Prevatt RN. The family appreciates all the prayers for us during this time.

Left to cherish her memory are her parents, Brian and Leaett Lipker; siblings, Kayla, Chloe’, Logan and Riley; grandparents, Dwain and Carol Lipker and Ken and Sandra Bagley; uncles, Loren Lipker, David Lipker and his wife Rebecca, Ethan Frizzell and his wife Sue; aunts, Donna McKenna and her husband Marc; and Colleen LaCombe and her husband Jon; and cousins, Hallie, Canaan, Abigail, Micah, Kourtney, Kendra, Mary and Kaitlyn.

Madison’s wish was to help other children who are battling this horrible disease. In lieu of flowers please donate to her doctor’s ground-breaking research. 

Make a donation today in memory of Madison!

Madison’s wish was to help other children who are battling this horrible disease. In lieu of flowers please donate to her doctor’s ground-breaking research. 

All donations will be allocated to the NPCF’s Evolutionary inspired therapy for newly diagnosed, metastatic, Fusion Positive Rhabdomyosarcoma with PI as Damon Reed, MD (Moffitt Cancer Center). Metastatic, fusion-positive rhabdomyosarcoma (RMS) has a poor outcome which is worsened with additional risk factors commonly called the Oberlin criteria. Patients that meet all 4 Oberlin criteria have an Event Free Survival (EFS) of less than 20% at 2 years. A more recent publication demonstrated a 6% 3 year EFS for any alveolar RMS with metastases at diagnosis. Attempts to intensify therapy through combining a series of active regimens have failed to improve survival in this high-risk population.

All therapeutic arms in this study are designed to meet the same primary aim of improving the 3-year event-free survival from 6% to 35% for these patients. We will investigate 3 arms that translate lessons from ecological theories of extinction and evolutionary principles of integrated pest management to develop resistance management plans and to improve patient outcomes along with a fourth conventional therapy arm.