Jammer’s Journey

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Jameson “Jammers” Everson Journey by Samantha Everson

“This is our little boy Jameson. We call him Jammers. He was born on February 19th, 2017. He has always been a happy little guy. His smile always lights up a room and can put you in a good mood no matter what kind of day you are having. He loves playing with his big brother and big sister. Loves dragons, dinosaurs, and cars. His laugh is contagious and he was always on the move. Our little guy has yet to talk but always lets you hear his voice.

In late 2019 early 2020, he started to digress in his walking and mobility.  He would cry trying to walk and he wasn’t gaining any weight. He was 3 years old and only 22 pounds. He started not wanting to play, hitting himself in the head all the time. Not eating and just wanting to lay in his bed or on the couch. Finally, we had enough. We made an appointment with his new pediatrician. Due to the COVID-19 outbreak taking the world by storm we had to make it a video call. Once the doctor saw how he would lift his legs if we wanted him to stand or walk and videos of how he wouldn’t let go of our hands if he did walk and cry every step he took. She also took into account everything we had told her going on. She immediately set us up with a neurologist. Two days later we went in and she referred us for an MRI on his head and spine. A couple of days later on April 14, 2020, we heard the worst news any parent can hear. Cancer. Your 3-year-old child has cancer.

He was admitted that day to Stanford Pediatrics Intensive Care Unit because they didn’t want to waste any time.   They would explain that he has fluid on his brain and over 100 tumors on his brain and spine. There was surgery to do a biopsy and to wait for the actual cancer diagnosis. What kind was it, what treatment would be needed? In the meantime we spent 2 weeks in the hospital, getting tests, surgeries, ng tube so he would get some kind of food. They hoped to drain the fluid and let his body do its natural thing by absorbing it. But in the end, he needed a shunt. Which the same day he got a port for chemo put in. Then the day came April 22 when we got the actual name of what kind of cancer he had. Diffuse leptomeningeal glioneuronal tumor. A very rare brain cancer. There are very few research papers on it. There is no cure. Tumors won’t go away. Doctors told us this could take him from us. My husband and I sat there in shock, in tears, in disbelief. How, why? How do we tell his brother and sister?

There is no removing the tumors because of how many and where they are located. We just do chemo and hope the tumors don’t grow. He has been on chemo for 3 in half months. He is walking and playing again, smiling, laughing, and being a kid again. There are still tough days. We are trying to live every day making memories and loving each other because the future is so unknown. This cancer has more questions than answers. With help from the National Pediatric Cancer Foundation, I hope we can bring more awareness and raise more money for research for this type of pediatric cancer and all pediatric cancers.”

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