NPCFighter: Teen Ambassador Initiative
Children at least 13 years of age who are currently battling cancer or in remission have the opportunity to share their story AND inspire others to take action against pediatric cancer. Ambassadors must be willing to commit to the program for one calendar year.
We are grateful for your interest and can’t wait to learn more about you!
Teen Ambassador Responsibilities and Opportunities:
- Submit your story with pediatric cancer to NPCF here to be featured on our social media sites and website as an official NPCF Ambassador
- Share your story to a minimum of 2 public groups and encourage them to get involved (example: signing up for our Do It Yourself fundraising program).
- Examples: school, the workplace of a friend/family member, a public event or an NPCF event
- Pass out connection cards before/after you speak to your audiences to retrieve their contact information/ interests in becoming involved. Mail/email the cards to NPCF after each event.
- Visit a clinic at your local hospital 3 times to promote the NPCFighter program
- Promote your story & involvement on social media – tag NPCF so we can share your hard work!
If you are interested in joining our NPCFighter Teen Ambassador Initiative please contact Miranda Chapman at mchapman@NationalPCF.org or 813-269-0955. We look forward to working with you!
Kyle P., 17, SARASOTA, FLA
Kyle was 10 years old when he was diagnosed with brain cancer.
He was a healthy boy, playing in a baseball tournament one weekend, when he started suffering from debilitating headaches followed by vomiting. We took him to see his pediatrician, who diagnosed him with pre-pubescent migraines. But after 2 weeks of these headaches coming every other day, we decided to call a neurologist in order to get Kyle an MRI. The results of the MRI showed he had a golf ball size tumor in his brain and that’s when our world changed.
Kyle was immediately admitted into the ICU at All Children’s Hospital and had emergency brain surgery. For 7 days we waited for test results, not knowing which type of cancer he had. I would say the unknown was the scariest times of our lives. Not knowing if your child was going to make it or not. When we finally got the test results, his oncologist explained the treatment protocol for his type of cancer, and right away started him with his treatment. Kyle went through 4 rounds of chemotherapy and 20 rounds of radiation to his entire brain. Even though he went through a few complications during his treatment, including emergency surgeries and losing his hair, Kyle never lost his sense of humor and his overly positive attitude.
Kyle was told he was in remission on June 11, 2011. Ever since then, he has worked tirelessly to spread awareness of this dreaded disease. He created a club at his high school called “Riverview Fights Cancer”, where he has about 50 members. Of all the money raised through fundraisers, his club donates 100% of the money raised to fund pediatric cancer research. Giving back and giving hope is Kyle’s #1 priority in life.
Olivia R., OLDSMAR, FLA.
What started out as what she described as her “bones aching” turned into a trip to All Children’s Hospital and a Leukemia diagnosis. Olivia was diagnosed with Acute Lymphoblastic Leukemia in February of 2015 at 15 years old. Her family’s life completely changed.
Olivia began her three year treatment at All Children’s. Her family explains that she has taken her diagnosis in stride. She goes with the flow and does not let cancer keep her from seeing the positive things in her life. “Olivia has a very positive attitude. We call her Liv Positive,” said Katrina Rivera, Olivia’s mom. “And she walks around proud with no hair and she’s 16 years old,” said David Rivera, Olivia’s dad.
Olivia is in her final phase of treatment. She has completed her in patient treatment and her oral maintenance chemo is underway for the next year. To follow Olivia’s journey visit her Facebook page, “Support Olivia’s fight against Leukemia.”
Tony C., 16, Sarasota, Fla.
In July of 2011 Tony, 11, had his kidney removed due to a cancerous tumor.
A new mass was found in February of 2013 at the location where his kidney used to be. Tony went through a phase 1 trial out of NIH from February 2013 through April 2013. Another tumor was found so he was referred back to his treating hospital. He had 2 tumors removed on April 24, 2013 and started ICE Chemo. Tony had no evidence of disease for 12 months.
He relapsed again in November of 2014. He had surgery to remove 3 tumors on November 13. He had surgery December 24 to remove his omentum. NIH did a study on Tony’s tumors and determined that he had undifferentiated Sarcoma, not Clear cell Sarcoma of the kidney. No other treatment options were available at this time. Tony relapsed June 12, 2015,
Tony started a trial involving chemo in July of 2015. He had 2 cycles of this trial over 2 months and then the tumor was removed. It was determined that the chemo he was on was not working well enough. September 4, 2015 he began chemo treatment.
He relapsed again in July of 2016. He had several tumors removed and will be starting oral chemo soon to try and stop the tumors from growing.
Through all of Tony’s relapses he has stayed strong and optimistic. He continues to share his story to raise awareness and funds for this disease.